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Join J.R. Martinez, winner of Dancing with the Stars, as he emcees a night to find a cure for Epidermolysis Bullosa– the worst disease you’ve never heard of.
On October 24, be part of the cure! Join debra of America for a night of honors and celebrations at Gotham Hall in New York City – because the cost of doing nothing is too great.
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What is EB?
Epidermolysis bullosa is a rare connective tissue disorder with many genetic and symptomatic variations. All forms of EB share the prominent symptom of extremely fragile skin that blisters and tears from minor friction or trauma. The more severe forms of EB have long lists of complications and secondary illnesses that require care from a range of medical specialists. EB is painful, debilitating and often fatal. As of today there is no cure or treatment. Pain management, wound care and protective bandaging are the only options. Wound care supplies often exceed $35,000 per month. But we are close. Our seven industry partners are racing to have the first FDA approved treatment. You can help. Join with debra of America to make these therapies a reality.
