The Best of the Rest of the Web: Special Moments, Life-Changing Slice of Pizza, and Post-College Youth with ASD

From the fall/winter 2012 issue of Special Parent magazine, a selection of thought-provoking, laugh-inducing, or plain interesting thoughts from the web and the world of special parenting.

 

“Here’s what I think: the only reason I’m not ordinary is that no one else sees me that way.”

—Auggie Pullman, the 10-year-old narrator who was born with a facial deformity preventing him from going to a mainstream school, in the young adult novel “Wonder,” by R.J. Palacio (@RJPalacio), who lives in NYC with her husband and two sons; “Wonder” is full of heart, hope, and empathy—or, as the author calls it, “a meditation on kindness” (Knopf; ages 8-12)

Girl and dandelion

“Like so many decisions in our family, the easier road is often the one overgrown with weeds.”

—Michaela Searfoorce, a  former musician turned never-stay-at-home mother who is currently raising three exceptional children (one with significant special needs), ages 11, 3 and 1, with another on the way, in Brooklyn; she blogs at  TheFoorce.com and also organizes monthly meetings geared toward the special needs community, runs a summer social skills group, and speaks at various local organizations and schools; read her contributions to “Special Parent” at nyspecialparent.com.

Moments Count
“How do we go back to the idea that ordinary can be extraordinary? How do we teach our children—and remind ourselves—that life doesn’t have to be all about public recognition and prizes, but can be more about our relationships and special moments?”
—Alina Tugend (@atugend) in “Redefining Success and Celebrating the Ordinary,” a thoughtful and not-so-ordinary Shortcuts column in “The New York Times” written in response to a graduation speech (“You’re Not Special”) that went viral: nymetroparents.com/grad-speech
“I’m dyslexic and I have a learning disability. In school, I didn’t do well so I goofed off. But cooking gave me a direction and it gave me focus.”
—Marc Murphy (@chefmarcmurphy), NYC-based celebrity chef and acclaimed restaurateur, on an episode of “Chopped All Stars,” on which he was competing for City Harvest (cityharvest.org); get expert tips on how to recognize dyslexia and what to do if you suspect your child is suffering at nymetroparents.com/dyslexia

FOR YOUTH WITH ASD, DURING THE FIRST SIX YEARS AFTER HIGH SCHOOL:

34.7% had attended college

55.1% had held employment

—per “Postsecondary Education and Employment Among Youth with an Autism Spectrum Disorder,” published in the June 2012 issue of “Pediatrics”; according to the study, youth with an ASD had the lowest rates of participation in employment and the highest rates of no participation compared with youth in other disability categories; read more at pediatrics.aappublications.org

To be truly helpful to the child with special needs, we need to back off from trying to make the child do what he can’t do…No matter how much we may want to help, and no matter what our expertise, we are 100-percent dependent on the child’s brain to make the necessary changes.”
—Anat Baniel (@anatbaniel), clinical psychologist, in “Kids Beyond Limits: The Anat Baniel Method for Awakening the Brain and Transforming the Life of Your Child with Special Needs” (Perigee), released in paperback earlier this year; learn more at anatbanielmethod.com

“Like a race horse…
I power through life with blinders on. Special needs mom blinders, actually. They help
me keep my focus on Max, avoid comparing him to other kids, and not obsess about problems that may lie down the road.”
—Ellen Seidman, on Love That Max (lovethatmax.com), the award-winning “blog about kids with special needs who kick butt,” where she chronicles the ups, downs, ins, and outs of life as a parent of a child with special needs

“Emma ate a slice of pizza last night.

pizzaThat sentence required some space. It needed to be written by itself with nothing else. For most of you, this may seem like an excuse-me-while-I-yawn moment. But for us, it was a DID-YOU-SEE-THAT-STOP-THE-CONVERSATION-EMMA-IS-EATING-PIZZA-FOR-THE-FIRST-TIME-SINCE-SHE-WAS-FOUR-YEARS-OLD moment. Please excuse me while I dance a little jig, do a little arm twirling while yelling woo-hoo, spin around, do a few jumps up and down and shout as loud as I can, “Oh yeah!” And, I don’t know, this might be totally overdoing it, but what the hell, a fist bump, just for good measure.”
—Ariane Zurcher (@EmmasHopeBook), a NYC mom of two who blogs with her husband, author Richard Long, about their daughter’s journey through a childhood of autism–and their hopes for her future—at emmashopebook.com; Ariane also contributes to The Huffington Post