New York City is an exhilarating place to raise a family, but I think most parents would agree that the city landscape can be stressful, too. What’s more, if your child has special needs, navigating the city can seem daunting and difficult. To help, here are 20 tips I’ve gleaned from my experience. I hope these bits of philosophical and practical advice will help as you embark on this journey with your family.
The Big Picture
1. First things first: if you suspect that your infant or child may have developmental delays, don’t be shy about broaching the subject with your pediatrician. Another great resource is YAI Network (yai.org), which can help you schedule an evaluation or find referrals for services your child may need.
2. Take a deep breath. If your child does have delays and requires services such as speech, physical or occupational therapy, repeat to yourself, “It will be okay”—even if you don’t believe it. New York City has some of the best programs to help children with developmental delays, so don’t start fearing the worst.
3. Remember that your child is more than a diagnosis, and don’t obsess over labels. You may hear an alphabet of terms, from ADHD to PDD- NOS to SPD. Your child is still the same person he or she was the day before; nothing has changed the essence of who your child is.
4. You are more than your child’s diagnosis, too. If your child’s delays or special needs require many therapies, it’s easy to let these take over your own life. Carve out time for yourself—even if it’s only 10 minutes a day. And of course, remember to make time for the rest of your family.
5. Accept help. It takes a village to raise any child, and it may take a large and experienced village to raise yours. Accept offers of help from grandparents, friends and neighbors. Some moms of special needs children panic about leaving their child with anyone else and their lives become restricted. Try not to let this happen to you.
Details, Details...
6. Get organized. You’ll have a lot of information to keep track of, including your child’s evaluations, reports and insurance claims. Start with a big loose-leaf binder and jot down everything, even records and details of phone calls.
7. Minimize the “schlep factor.” You can log many miles taking your kid to and from therapies. Try to schedule appointments at convenient times and locations, taking your child’s nap times and other routines into consideration. Write out a weekly schedule, and keep therapists’ phone numbers and addresses handy.
8. Respect your child’s therapists. As busy as you are, they are even busier, so respect their time and give ample notice if you need to cancel. Remember to show appreciation for how much these professionals are helping your child. Year after year, therapists tell me how much they appreciate parents who appreciate their work.
9. Do your online research, but be careful. There is a lot of misinformation online, particularly about more serious conditions such as autism. Tempers flare and discussions get heated. Watch what you say, and respect others’ opinions.10. Read a book or two. One guide I highly recommend for new special needs parents is “The Elephant in the Playroom: Ordinary Parents Write Intimately and Honestly About the Extraordinary Highs and Heartbreaking Lows of Raising Kids with Special Needs.” And for a good laugh on even the toughest days, read “Shut Up About Your Perfect Kid: A Survival Guide for Ordinary Parents of Special Children.”
Hidden Gems & Resources
11. Find the best resources for your family. Ordinary activities like haircuts can be traumatic for children with sensory issues. Christina at Cozy’s Cuts for Kids is a hero to many families; she’s loving and patient and helps even the most terrified children (mine included) tolerate their haircuts over time.
12. Another common trouble spot is dentist visits. We’re trying out new dentists ourselves, and have heard wonderful things about Jed Best DDS on the Upper West Side, and Lois Jackson DDS in the Village and Brooklyn Heights.
13. Know your child’s limits. The city is full of great activities for kids, but sometimes crowded, loud events aren’t the best for children with special needs. The good news is that more special needs-friendly events are cropping up: AMC Theaters holds a monthly Sensory-Friendly Film showing on the Upper West Side (see amctheatres.com/ SFF for more info); Music for Autism (musicforautism.org) hosts free, interactive, special needs-friendly concerts every other month; and the Jewish Museum (jewishmuseum.org) holds frequent art workshops for children with special needs.
14. Dive in. Many kids with special needs find water very soothing A few places around town that your child may enjoy: the Hall of Ocean Life at the American Museum of Natural History (amnh.org), City Treehouse in Chelsea for indoor water play (citytreehouse.com) and Greenacre Park, a small urban oasis with a waterfall in East Midtown.
15. Reach out. Raising a child with special needs can feel isolating, and it helps to meet other parents who are doing the same thing. The Jewish Community Center (jccmanhattan.org) runs wonderful support groups for parents and events for the entire family. Also, check out a new group called SPARK (sparkonline.org) which holds “Moms’ Nights Out” for special needs parents and offers online resources as well. Lastly, UrbanBaby.com and YouBeMom.com both have helpful message boards for the special needs community.
Handling Everyone Else
16. Decide what you’ll share. Not everyone needs to know every physical, psychological and neurological detail about your child. If you feel like sharing, a simple “my child has some delays” suffices. Keep the specific details to yourself and friends and family, especially as your child gets older, and privacy becomes more important to him or her. On the other hand, if parenting a child with special needs fuels the activist in you, advocacy and awareness-raising is a great avenue into which to channel your energy.
17. Try to go “zen.” There’s a lot of chatter among NYC parents about everything from infant development to preschool admissions. These comments can be unintentionally hurtful, so try to take them with a grain of salt, and remember that most parents don’t understand what you’re going through and don’t mean to offend you.
18. Brace yourself for unsolicited advice: “My friend’s cousin´s nephew had a speech delay and drank fish oil all day long—have you tried that?” Simply smile and say, “Thanks, I’ll look into that.”
19. Give people a break. Let’s say that your child has a temper tantrum on the bus. Of course, all children do this, but a child with special needs may be “triggered” more easily or often. People stare, roll their eyes and make comments. Again, they don’t get it; they haven’t walked in your shoes. Try to be the bigger person and ignore it.
20. Remember to give yourself a break, too. It’s okay if you forget all of this advice, and it’s okay to have a meltdown. Parenting is the toughest job in the world, and parenting a child with special needs is even tougher. The highs are higher, and the lows are lower. Have faith in your child, and in yourself. You are your child’s best resource!
Joanna
Dreifus is a Manhattan mother of two children who have gone through New
York City’s Early Intervention program. She is on the board of YAI’s
New York League for Early Learning (yai.org/agencies/nyl/) and also
writes the blog MyMomShops (mymomshops.blogspot.com).
Photo: Joanna Dreifus with her children, Samuel, 4, and Rachel, 7. Photo by Andrew Schwartz.
great tips! As for parent boards, as an fyi, for those in Brooklyn, Park Slope Parents also offers a special needs listserv.
Thanks a lot for sharing this amazing knowledge with us. This site is fantastic. I always find great knowledge from it.
<a href="http://www.flowers2world.com/send_flowers_online/flowers_delivery_in_Thailand.asp">flowers delivery in thailand</a> | <a href="http://www.flowers2world.com/send_flowers_online/flowers_gifts_turkey.asp">flowers turkey</a>
If ur child has special needs then u have to find it out and take care that he wont feel left out
Same day payday loans
We are all human and we all make mistakes because no one is perfect. So do not beat yourself up if you have made a tattoo supplies mistake, because more people than you think are in the same boat as you. For instance, Angeline Jolie has made her fair share of beginner tattoo kit mistakes. We all know about her infamous “Billy Bob” tattoo that was on her arm. Well after they divorced she got his name and that dragon lasered off of her arm. Where that horrible rotary tattoo machines once was are now the coordinates to where all six of her children were born. She has also gotten five other tattoos covered up buy tattoo ink.