• A Playhouse Of Their Own

    The Down Syndrome Education And Awareness Center GiGi’s Playhouse Is Coming To New York City

    By Eric Messinger

    Prepare to be inspired.

    As an oasis of support for families with
    children with Down syndrome — and as a role model for how families with
    children of any special need can form a vibrant and beloved community — there
    is nothing quite like GiGi’s Playhouse. — If you’ve already heard of GiGi’s, it’s probably
    because there are playhouses in seven other cities across the country. But the
    organization will soon be in New York City, too. Because of GiGi’s potential to have a big,
    positive impact on the lives of many local families, New York Family has become
    one of its media sponsors, and we encourage you to take a few minutes to
    learn more about the organization, spread the word to friends who might be
    interested, and of course, to support GiGi’s.  


    Read more about GiGi’s Playhouse and the two NYC
    moms leading the effort to bring it to the city in this article,
    which will appear our the upcoming March issue.  And for more information about how to contribute to GiGi’s Playhouse, either financially or as a volunteer, click here.

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    A Playhouse Of Their Own

    Now In Seven Cities, The Next Stop For GiGi’s Playhouse Is New York

    By New York Family

    For many parents of a child with Down syndrome, the
    diagnosis can be an isolating and overwhelming experience. “My first reaction
    was, ‘How am I going to take care of my child? How am I going to protect her?’”
    says Tracy Nixon, whose daughter Laura, now 7, was diagnosed with Down syndrome
    at birth in 2003.  

    Because the Nixons had decided not to do prenatal testing, the diagnosis came
    as a surprise, and they found themselves scrambling to learn about Down
    syndrome and the resources available to them. “I probably didn’t sleep at all
    the first six months—I spent the entire time scouring the internet,” says
    Nixon, who is a graduate of Columbia Business
    School and a former executive at
    Goldman Sachs. 

    In September of 2004, Nixon met Debbie Morris, a fellow New Yorker whose daughter
    Sophia, only a year younger than Laura, also had Down syndrome. “When Sophia
    was born, it was definitely a shock to my husband and me,” says Morris, who is a
    senior vice president at Chartis Insurance. “But luckily I was connected with Tracy
    the third day after Sophia was born, and she was a tremendous help.” 

     Beyond their
    supportive friendship, Nixon and Morris became very interested in fostering a
    more cohesive community for all local
    families with children with Down syndrome. In their experience, the informal
    network of social service agencies, schools, and websites for families with
    children with Down syndrome—or any other special need for that matter—can be
    helpful but patchy and porous. And parents who don’t have either the financial
    resources or the time to properly navigate it can lose out on identifying vital
    services for their child and connecting with other families facing similar
    challenges.  

    That’s why Nixon and Morris are spearheading the effort to
    bring a remarkable institution called GiGi’s Playhouse to New
    York City.

     A Down syndrome awareness and education center, GiGi’s
    started in 2003 in the Chicago of
    suburb of Hoffman Estates and is now in seven cities
    around the country. Its founder, Nancy Gianni, was inspired by her daughter, GiGi.

    “I promised I would make the world a more accepting place
    for her,” Gianni writes on the GiGi’s Playhouse website [gigisplayhouse.org].
    “I remember my first support group meeting—we were in the corner of a sterile
    room at the hospital. I just keep thinking, ‘Why isn’t there a place for us?’ That is what propelled me to
    create a place where families could come for resources and networking, where
    kids with Down syndrome could be the leaders, and where we could celebrate our
    diagnosis.”

    In May of 2009, Nixon and Morris flew to visit GiGi’s Playhouse’s flagship
    location in Hoffman Estates, Illinois.
    The first thing that struck them was its exterior, which showcased beautiful
    professional photos of children with Down syndrome. The inside was equally colorful
    and welcoming, with fairytale inspired-murals and children’s artwork adorning
    the walls, and books, toys, games and other interactive projects spread throughout
    the space. The playhouse also featured a cozy, living room area for the parents,
    which overlooked the children’s play space.

    “They had a terrific format,” remembers Nixon. “The kids were playing and there
    were volunteers facilitating play, and the parents were bonding and exchanging
    resources,” she says. “We were all together just celebrating our children.”

    “It was just full of joy, light and happiness,” agrees Morris. “As soon as we
    got there, I thought, ‘We have to
    bring this to New York.’”

     As the president and vice president
    respectively of GiGi’s New York City, Nixon and Morris are currently they’re in
    the in the process of finding a location, looking for about 1500 to 2000 square
    feet of ground floor, storefront space easily accessible by public transit. “Basically,
    the most expensive real estate in New York City,”
    Nixon says with a laugh. “But the whole point of GiGi’s is to celebrate this
    diagnosis and be a visible part of the community, and we can’t do that from the
    eighth floor of an office building.”

     Like at all GiGi’s Playhouses, the New York center will
    offer programming for children and parents, ranging from pre-natal diagnosis
    support to classes to help children crawl and walk, to mixers and movie nights for
    tweens and teens. All of the programming will be free, with the exception of
    the math and literacy tutoring programs, for which there will be a nominal fee
    to cover materials. 

    “This is a real resource—anyone can come
    here and participate,” says Nixon.

    “GiGi’s doesn’t turn away anyone. If someone with autism walks in, Cerebral Palsy—if
    someone is disabled in any way, it’s fine,” Morris agrees. “It’s not only
    awareness, it’s acceptance.”

    For Nixon and Morris, one of GiGi’s greatest
    attributes is that it offers a palpable sense of community to children who
    otherwise might not have it.

    “In the early years, most children don’t distinguish themselves from another
    child, but they do when they get to middle school,” says Nixon. “So when
    children with Down syndrome start to lose some of the closeness they have with
    their typically developing peers, if they have a strong community of their own,
    there’s not this sense of loss. Instead, they can say, ‘I’ve got all these
    friends who are just like me.’”

    And another wonderful outcome, according to parents from a variety of GiGi’s
    Playhouses, is that the educational programs give children a tremendous
    academic boost. “Kids with Down syndrome are visual learners who respond well
    to repetition, so the more exposure they have to the subject matter, the better
    off they are,” says Nixon. “So the intangible support helps with children’s
    confidence, and the tangible support helps them in school.”

     While GiGi’s Playhouse New York City is already generating
    a lot of buzz among city families, the organization is still in great need of
    contributions of all kinds, from play volunteers to administrative support to
    financial donations, as well as physical items like toys, office materials and
    play materials. “We need all skills; no one [who wants to help] will be turned
    away.” 

    “We have already had tons of support in terms of how people want to contribute,
    it’s really a community effort and it will take the community to build it,”
    says Morris. “I keep saying, GiGi’s is going to rock New York, and I believe it.”

    For more information about GiGi’s
    Playhouse, visit gigisplayhouse.org.

    Photo of play group: provided by GiGi’s Playhouse Hoffman Estates. Photo of Nixon, Morris and their daughters by Andrew Schwartz.

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